Mencap have begun a new campaign, called ‘Treat Me Well’, into hospital care for young people with a Learning Disability and the move from children’s services to adult services.
Moving from children’s services to adult services is called transition. Adult services are different from children’s services and you may have more choices on the care you receive and the decisions that you are able to make.
Mencap have produced a short film with Bradford People First that shows the differences you can expect in hospital as a young adult. It is aimed at young people with a learning disability and can be shared with family, friends, carers and hospital staff.
For more information on Mencap’s Treat Me Well campaign, go to: https://www.mencap.org.uk/get-involved/campaign-mencap/treat-me-well/hospital-care-young-people-learning-disability?utm_campaign=1851046_Campaigners%20Transitions%20140721&utm_medium=email&utm_source=dotmailer&dm_i=4P14,13O9Y,2XI977,50REF,1
You can also access an Easy Read PDF document below.
Are you D/deaf or Disabled with an impairment or long-term health condition?
Have you been given any support by a social worker in the last 2 years (for yourself, not as a carer)?
Are you 18 or over?
If you can answer ‘Yes’ to all these questions then you fit the bill for a study being led by Shaping Our Lives, King’s College London and the British Association of Social Workers.
The study will explore how adult social workers use (or do not use) digital technologies when communicating with and supporting Disabled people. By digital technologies we mean things like emails, phone calls, texts, WhatsApp or Zoom calls. They want to understand the pros and cons in the use of digital technologies for different people and for different tasks and we would like to hear your experiences.
You will be given a choice about how you want to take part. It could be an interview by phone or via Zoom, or face-to-face (Covid allowing). Or you could opt to engage in an email conversation with a researcher. The researchers on this study are Disabled lay researchers. The researcher team will use the findings from this study to provide information and guidance for social workers and D/deaf and Disabled people, which they hope will improve people’s experience.
In recognition of your time, they will give a £25 voucher to people who take part.
If you might be interested or would like to ask any questions please contact the researcher, Sophie on 0207 848 3033 or Sophie.Sarre@kcl.ac.uk
Our Outreach Project Coordinator Dan was nominated by the Forum as a Herowho has been and still is doing great work in Health and Wellbeing.
This is one of the seventeen Global Goals, created by world leaders and the United Nations (UN) back in 2015 to work together to build a better future for everyone. The campaign Is being done in the run up to the UN’s Climate Change Conference in November.
We nominated Dan because as soon as the first lockdown started he began running the peer support sessions online every day of the week. He was even running them on weekends and when on holiday! In addition, he also goes ‘above and beyond’ is supporting peer support group members outside of peer support meetings – even going round to someone’s house to check they are OK.
We’ve been asked by Sophie Pritchard from Next Link, a Bristol based support service organisation for domestic absue and mental health, to get input from Disabled people to help with the development of their new forum.
The new forum will help shape domestic abuse services in Bristol and it’s really important that they hear from Disabled people about their needs and experiences.
Next Link have an initial survey to get input on how they can set up the forum in a way that is as accessible as possible and an Expression of Interest Form. Both can be found at the links below or you can contact Sophie if you need the survey and form in another format.
We announce the very sad news that Forum trustee and ex-Frome Vale councillor Bill Payne died in April this year.
He served both of the communities he was a member of (Frome Vale and Disabled people) for many years and will be greatly missed.
He became a Forum trustee after he retired from being a councillor, but was always an advocate for Disabled people. He was an active member of the Bristol and South-West local group and an ex-trustee of the Haemophilia Society.
Forum Manager, Laura, said: “Bill will be missed by all who knew him. He was a passionate campaigner for improving the lives of Disabled people and will be remembered as a gentle man, considerate of others ‘ needs, softly spoken, personable and a good listener. Our thoughts and sincere condolences to his wife Margaret, daughter Emily, and two grandchildren.”
In a new inquiry, the Equality and Human Rights Commission (EHRC) are studying how older and Disabled adults and unpaid carers can challenge local council decisions about their social care or support in England and Wales.
Decisions about people’s access to social care or support – such as someone’s right to it and what kind of care or support they can access – can really affect the self-respect and inclusion of many Disabled and older adults, as well as unpaid carers. It is vital that someone can easily challenge a decision if they feel it leaves them without the right support.
Looking at England and Wales, EHRC will examine people’s experiences of challenging decisions made by their local councils about social care for older and Disabled people or support for unpaid carers. They will consider if these decisions can be meaningfully challenged if they fall short, and if the current ways to do so are accessible and effective, including whether high quality support is available.
EHRC have launched a survey to kick-start the inquiry’s evidence collection. They want to hear from adults in England and Wales who are accessing or have tried to access social care or support, including unpaid carers accessing support for their caring role. The survey asks some questions about the impact of decisions made by local councils about people’s access to social care or support, and experiences of challenging decisions. It will be open until 15 September.
There are lots of things going on in the weeks and months ahead that Disabled people can get involved with to help stop climate change. These include events taking place with our own Community Climate Action (CCA) project, The Great Big Green Week and even the UK Government.
Many single-use plastics can be found in the kitchen, making it a great place to start looking at simple swaps.
Single-use plastics are plastic used for throwing away after the first use e.g. plastic packaging on our food, yoghurt pots, all that plastic your online purchases are covered in, flimsy plastic bags, etc.
South Gloucestershire Council has made a video giving people a few ideas about how to be more environmentally-friendly about these plastics.
Be a part of the Great Big Green Week! From the 18 – 26 September! Thousands of events across the UK will celebrate how communities, businesses, faith groups and sports clubs are stepping up to tackle climate change. From litter picks to concerts, there are ways for everyone to get involved and tell our government to up its game on climate change.
Capital grant fund. Public, private, and third sector applicants in England are eligible. To capitalise on the progress made by the Heat Network Investment Project (HNIP) by supporting the development of low and zero carbon (LZC) heat networks (including the supply of cooling). It will increase the utilisation of low-carbon heat in heat networks and contribute towards the overall decarbonisation of heat in the UK. Deadlines 12 Aug and 7 Oct.
To help do this work we are running sharing sessions. These sessions will bring together Disabled people with subject experts and council representatives.
You are invited to join these sessions to share your expertise and lived experience as a Disabled person on the issue. Subject experts will listen to us and suggest projects that we could put into our plan and changes that they could make based on what they have learnt from us.
Places are limited for all sessions. Email: email@example.com to take part. Please say which session/s you wish to attend and if you have any access needs.
Nature When: 26th July, 1.30pm tea and biscuits, 2.00 – 3.30 discussion Where: Online and St Paul’s Learning Centre. What is it about: This session will explore how we can improve access to nature for Disabled people in Bristol and what the Disabled community can do to improve nature in Bristol.
Transport When: 28th July, 10.30am tea and biscuits, 10.45 – 12.30 discussion. Where: Online and Easton Community Centre. What is it about: This session will explore how we can make sure that Disabled people can travel in a way that is good for both us and the planet.
Energy When: 30th July, 12.30 tea and biscuits, 13.00 – 15.00 discussion. Where: Online and St Paul’s Learning Centre. What is it about: This session will explore how the Disabled community can use and access energy in ways that are good for both us and the planet.
Last Monday the Government announced we will be moving to Phase 4 of their Road Map out of lockdown today – Monday 19 July.
The government called its plans for coming out of lockdown in 2021, a Road Map. Phase 4 is when there are virtually no COVID laws making you do things that make us safe.
But even though most of the COVID-19 laws no longer exist the pandemic is a long way from being over. The government said Phase 4 is not about anyone stopping wearing a mask, etc but about changing things so that instead of a law forcing us to behave in safe ways it is now up to us to make ourselves do these things.
In Bristol, our infection rates are still increasing and there has been an increase in the number of people with COVID-19 having to be in hospital. Our rates of vaccine uptake are quite good but we still need lots of Bristol’s younger adults to book their vaccination. Most of Bristol’s new COVID-19 cases are in this age group.
It is everyone’s responsibility to take steps to keep themselves and others safe. Be considerate and respectful of those around you. Think about not only your own risks but also of others, particularly those who are clinical extremely vulnerable (CEV).
We are asking you to be very careful and advising people to:
make sure they have both doses of the vaccination,
wear face coverings in enclosed and crowded spaces,
try to meet outdoors or in well-ventilated indoor areas,
self-isolate and get a PCR test if you have symptoms,
keep taking regular rapid tests twice weekly if you haven’t got symptoms,
wash your hands or use hand sanitiser regularly throughout the day,
cover your nose and mouth when you cough and sneeze, and
stay at home if you are unwell.
Also, don’t forget that it is still the law that you must self-isolate if you test positive or are told to do so by NHS Test and Trace.
So, remember, no law making us wear masks doesn’t mean we don’t need to. We still need everyone to do what will help us beat COVID-19:
Hands – Clean your hands often,
Face – wear a mask to cover your nose and mouth,
Space – keep plenty of space between people who are not living together,
Fresh Air – when indoors with people you don’t live with, open as many windows as you can, and
Gatherings – keep to the limits on indoor and outdoor gatherings that you have been following for the last month or so.
Bristol City Council, with the Bristol, North Somerset and South Gloucestershire (BNSSG) COVID-19 Vaccination Programme, have launched a new vaccine programme aimed at young people called ‘Let’s get the jab done‘.
Whilst the campaign has been designed to encourage all young people to get their vaccination, it is even more important for Disabled young people to get vaccinated for their own benefit and that of others. It is essential that you as well as everyone else gets the vaccine as it is important in our fight against COVID-19.
With the vaccine now available to everyone over the age of 18, and ahead of the Government’s target to offer all adults a vaccine by Sunday 25 July, vaccinations are even more accessible and easy to get. The NHS has upped the number of appointments on the National Booking Service (NBS) and walk-in clinics are available across Bristol, no bookings needed.
To find out more information about the campaign and to find out where your local vaccination options, including walk-in clinics, are, go to: www.grabajab.net
We’ve been asked by one of our members to promote a survey from South Gloucestershire Council on plans to develop an all-age Learning Disabilities Strategy.
South Gloucestershire Council would like to hear from parents and carers of young people and adults with Learning Disabilities in South Gloucestershire on their expereinces, engagement and expectations with the support they need and what they would like to see included in the strategy.
If you are a parent or carer of young people or adults with Learning Disabilities living in South Gloucestershire and you would like to take part in the survey, please download the Microsoft Word document below. There is an Easy Read version that cna be downloaded below the download of the non-easy version.