Information on Hospital Care for Young People with a Learning Disability from Mencap

Mencap have begun a new campaign, called ‘Treat Me Well’, into hospital care for young people with a Learning Disability and the move from children’s services to adult services.

Moving from children’s services to adult services is called transition. Adult services are different from children’s services and you may have more choices on the care you receive and the decisions that you are able to make.

Mencap have produced a short film with Bradford People First that shows the differences you can expect in hospital as a young adult. It is aimed at young people with a learning disability and can be shared with family, friends, carers and hospital staff.

For more information on Mencap’s Treat Me Well campaign, go to: https://www.mencap.org.uk/get-involved/campaign-mencap/treat-me-well/hospital-care-young-people-learning-disability?utm_campaign=1851046_Campaigners%20Transitions%20140721&utm_medium=email&utm_source=dotmailer&dm_i=4P14,13O9Y,2XI977,50REF,1

You can also access an Easy Read PDF document below.

Research into social workers’ communication with D/deaf or Disabled service users from Shaping Our Lives

Banner image that shows a graphic of group of three heads, text which reads 'Applicants Wanted - Diogital Technologies Study' and the logos for Shaping Our Lives, Kings College London and the British Association of Social Workers.


Are you D/deaf or Disabled with an impairment or long-term health condition?

Have you been given any support by a social worker in the last 2 years (for yourself, not as a carer)?

Are you 18 or over?

If you can answer ‘Yes’ to all these questions then you fit the bill for a study being led by Shaping Our Lives, King’s College London and the British Association of Social Workers.

The study will explore how adult social workers use (or do not use) digital technologies when communicating with and supporting Disabled people. By digital technologies we mean things like emails, phone calls, texts, WhatsApp or Zoom calls. They want to understand the pros and cons in the use of digital technologies for different people and for different tasks and we would like to hear your experiences.

You will be given a choice about how you want to take part. It could be an interview by phone or via Zoom, or face-to-face (Covid allowing). Or you could opt to engage in an email conversation with a researcher. The researchers on this study are Disabled lay researchers. The researcher team will use the findings from this study to provide information and guidance for social workers and D/deaf and Disabled people, which they hope will improve people’s experience.

In recognition of your time, they will give a £25 voucher to people who take part.

If you might be interested or would like to ask any questions please contact the researcher, Sophie on 0207 848 3033 or Sophie.Sarre@kcl.ac.uk

Bristol Disability Equality Forum’s Outreach Project Coordinator Dan featured in the Global Goals #Bristol17 Campaign!

Photo of Dan sitting in front of a bright green background. He's holding up a bright green square shaped placard that reads in white text '3 Good Health and Wellbeing' with a graphic of a heartbeat and heart.

Our Outreach Project Coordinator Dan was nominated by the Forum as a Herowho has been and still is doing great work in Health and Wellbeing.

This is one of the seventeen Global Goals, created by world leaders and the United Nations (UN) back in 2015 to work together to build a better future for everyone.  The campaign Is being done in the run up to the UN’s Climate Change Conference in November.

We nominated Dan because as soon as the first lockdown started he began running the peer support sessions online every day of the week.  He was even running them on weekends and when on holiday!  In addition, he also goes ‘above and beyond’ is supporting peer support group members outside of peer support meetings – even going round to someone’s house to check they are OK.

To watch the video where Dan is interviewed and read about how we as the Forum are involved, go to: https://globalgoalscentre.org/project/ensuring-the-wellbeing-and-rights-of-disabled-people-across-bristol/

You can find out more about the Global Goals Centre at: https://globalgoalscentre.org/tag/bristol-17/

Survey on Setting up a Domestic Abuse Survivor Forum

Next Link logo - a set of eight different coloured cubes arranged into a cube shape with a ninth single white cube in the middle. Next to it is blue text which reads 'NEXTLINK changing the face of domestic abuse support services. Next to that is a small pink heart on the palm of a white hand on top of a blue circle.

We’ve been asked by Sophie Pritchard from Next Link, a Bristol based support service organisation for domestic absue and mental health, to get input from Disabled people to help with the development of their new forum.

The new forum will help shape domestic abuse services in Bristol and it’s really important that they hear from Disabled people about their needs and experiences.

Next Link have an initial survey to get input on how they can set up the forum in a way that is as accessible as possible and an Expression of Interest Form.  Both can be found at the links below or you can contact Sophie if you need the survey and form in another format.  

Sophie’s email is sophie.pritchard@nextlinkhousing.co.uk and her office number is 0117 925 0680.  The deadline for both is 13 August.

Survey: https://www.surveymonkey.co.uk/r/LKLS7MY

Expression of Interest form: https://docs.google.com/forms/d/1RJtBvCrVe0V8Xr-R6tvWJBOkbZ_IGDecOF6RdxuLhd4/edit

Death of a Trustee

We announce the very sad news that Forum trustee and ex-Frome Vale councillor Bill Payne died in April this year. 

He served both of the communities he was a member of (Frome Vale and Disabled people) for many years and will be greatly missed.

He became a Forum trustee after he retired from being a councillor, but was always an advocate for Disabled people.  He was an active member of the Bristol and South-West local group and an ex-trustee of the Haemophilia Society.

Forum Manager, Laura, said: “Bill will be missed by all who knew him.  He was a passionate campaigner for improving the lives of Disabled people and will be remembered as a gentle man, considerate of others ‘ needs, softly spoken, personable and a good listener. Our thoughts and sincere condolences to his wife Margaret, daughter Emily, and two grandchildren.”

Inquiry into Challenging Decisions about Adult Social Care from the Equality and Human Rights Commission

Equality and Human Rights Commission logo. Equals symbol to left of text which reads 'Equality and Human Rights Commission'.

In a new inquiry, the Equality and Human Rights Commission (EHRC) are studying how older and Disabled adults and unpaid carers can challenge local council decisions about their social care or support in England and Wales.

Decisions about people’s access to social care or support – such as someone’s right to it and what kind of care or support they can access – can really affect the self-respect and inclusion of many Disabled and older adults, as well as unpaid carers. It is vital that someone can easily challenge a decision if they feel it leaves them without the right support.

Looking at England and Wales, EHRC will examine people’s experiences of challenging decisions made by their local councils about social care for older and Disabled people or support for unpaid carers. They will consider if these decisions can be meaningfully challenged if they fall short, and if the current ways to do so are accessible and effective, including whether high quality support is available.

To find out more information about the inquiry, go to: https://www.equalityhumanrights.com/en/inquiries-and-investigations/inquiry-challenging-decisions-about-adult-social-care?utm_source=e-shot&utm_medium=email&utm_campaign=Socialcareinquirylaunchemail

Survey for those Accessing Social Care

EHRC have launched a survey to kick-start the inquiry’s evidence collection. They want to hear from adults in England and Wales who are accessing or have tried to access social care or support, including unpaid carers accessing support for their caring role. The survey asks some questions about the impact of decisions made by local councils about people’s access to social care or support, and experiences of challenging decisions. It will be open until 15 September.

To fill out the survey, go to: https://www.smartsurvey.co.uk/s/C5MBWX/?utm_source=e-shot&utm_medium=email&utm_campaign=Socialcareinquirylaunchemail

You can find the British Sign Language (BSL) version of the survey at the following link: https://www.youtube.com/watch?v=vMifx8Guw18

You can find the Easy Read Version by clicking the download button below.

Climate News and Events from the Forum’s Community Climate Action Project and Other Organisations

There are lots of things going on in the weeks and months ahead that Disabled people can get involved with to help stop climate change. These include events taking place with our own Community Climate Action (CCA) project, The Great Big Green Week and even the UK Government.

Plastic-Free July

Many single-use plastics can be found in the kitchen, making it a great place to start looking at simple swaps.

Single-use plastics are plastic used for throwing away after the first use e.g. plastic packaging on our food, yoghurt pots, all that plastic your online purchases are covered in, flimsy plastic bags, etc.

South Gloucestershire Council has made a video giving people a few ideas about how to be more environmentally-friendly about these plastics.

Watch the video at: https://southglos.us3.list-manage.com/track/click?u=d80523c882d7ac64e89f5e037&id=acba296bec&e=cc70c3191a

The Great Big Green Week

Be a part of the Great Big Green Week! From the 18 – 26 September! Thousands of events across the UK will celebrate how communities, businesses, faith groups and sports clubs are stepping up to tackle climate change. From litter picks to concerts, there are ways for everyone to get involved and tell our government to up its game on climate change.

To find out more and find local events near you, go to https://greatbiggreenweek.com/

Green Heat Network Fund (GHNF) Transition Scheme

Capital grant fund. Public, private, and third sector applicants in England are eligible. To capitalise on the progress made by the Heat Network Investment Project (HNIP) by supporting the development of low and zero carbon (LZC) heat networks (including the supply of cooling). It will increase the utilisation of low-carbon heat in heat networks and contribute towards the overall decarbonisation of heat in the UK. Deadlines 12 Aug and 7 Oct.

To find out more information, go to https://www.gov.uk/government/publications/green-heat-network-fund-ghnf-transition-scheme?dm_i=6MG6,9MJI,1GCX5M,16418,1

CCA Project Survey, Events and Billboard Takeover

Have your say!

Fill in our survey: https://survey.sogosurvey.com/r/ZCIWRp
Easy read survey: https://bristoldef.org.uk/community-climate-action/survey.sogosurvey.com/r/CFWZDr

Attend a Sharing Session!

To help do this work we are running sharing sessions. These sessions will bring together Disabled people with subject experts and council representatives.

You are invited to join these sessions to share your expertise and lived experience as a Disabled person on the issue. Subject experts will listen to us and suggest projects that we could put into our plan and changes that they could make based on what they have learnt from us.

Places are limited for all sessions. Email: cca.bristoldef@gmail.com to take part. Please say which session/s you wish to attend and if you have any access needs.

Nature
When: 26th July, 1.30pm tea and biscuits, 2.00 – 3.30 discussion
Where: Online and St Paul’s Learning Centre.

What is it about: This session will explore how we can improve access to nature for Disabled people in Bristol and what the Disabled community can do to improve nature in Bristol.

Transport
When: 28th July, 10.30am tea and biscuits, 10.45 – 12.30 discussion.
Where: Online and Easton Community Centre.

What is it about: This session will explore how we can make sure that Disabled people can travel in a way that is good for both us and the planet.

Energy
When: 30th July, 12.30 tea and biscuits, 13.00 – 15.00 discussion.
Where: Online and St Paul’s Learning Centre.

What is it about: This session will explore how the Disabled community can use and access energy in ways that are good for both us and the planet.

Billboard takeover!

Help our message go big by donating to our billboard crowdfunder. Every little helps: https://www.gofundme.com/f/help-bdef-make-our-message-go-big

Coronavirus Update 19th July

Photograph of various items related to Covid-19 including a blue hospital face mask, blue gloves, a mobile phone showing the test and trace system, toilet roll, hand sanitiser and a bottle of the vaccine.

Last Monday the Government announced we will be moving to Phase 4 of their Road Map out of lockdown today – Monday 19 July. 

The government called its plans for coming out of lockdown in 2021, a Road MapPhase 4 is when there are virtually no COVID laws making you do things that make us safe.

But even though most of the COVID-19 laws no longer exist the pandemic is a long way from being over.  The government said Phase 4 is not about anyone stopping wearing a mask, etc but about changing things so that instead of a law forcing us to behave in safe ways it is now up to us to make ourselves do these things.

In Bristol, our infection rates are still increasing and there has been an increase in the number of people with COVID-19 having to be in hospital.  Our rates of vaccine uptake are quite good but we still need lots of Bristol’s younger adults to book their vaccination. Most of Bristol’s new COVID-19 cases are in this age group.

It is everyone’s responsibility to take steps to keep themselves and others safe.  Be considerate and respectful of those around you.  Think about not only your own risks but also of others, particularly those who are clinical extremely vulnerable (CEV).

We are asking you to be very careful and advising people to:

  1.  make sure they have both doses of the vaccination,
  2. wear face coverings in enclosed and crowded spaces,
  3. try to meet outdoors or in well-ventilated indoor areas,
  4. self-isolate and get a PCR test if you have symptoms,
  5. keep taking regular rapid tests twice weekly if you haven’t got symptoms,
  6. wash your hands or use hand sanitiser regularly throughout the day,
  7. cover your nose and mouth when you cough and sneeze, and
  8. stay at home if you are unwell. 

Also, don’t forget that it is still the law that you must self-isolate if you test positive or are told to do so by NHS Test and Trace. 

So, remember, no law making us wear masks doesn’t mean we don’t need to.  We still need everyone to do what will help us beat COVID-19:  

  1. Hands – Clean your hands often,
  2. Face – wear a mask to cover your nose and mouth,
  3. Space – keep plenty of space between people who are not living together,
  4. Fresh Air – when indoors with people you don’t live with, open as many windows as you can, and
  5. Gatherings – keep to the limits on indoor and outdoor gatherings that you have been following for the last month or so.

Thank you.

COVID-19 Drop-In Vaccination Centres

Photo of a small bottle of a Covid-19 Vaccine in front of a blue backdrop.

Drop-in centres, also known as walk-in centres, are available for anyone aged 18 years and older who lives in Bristol, North Somerset and South Gloucestershire to attend. This includes all Disabled people.

You don’t need an appointment to attend, but if you know your NHS number this will help speed up registering your details.

Second vaccinations are given 8 weeks after the first. Please do not attend a drop-in centre if you had your first vaccination less than eight weeks ago.

Remember to wear a face covering to the drop-ins. Please also remember to eat and drink before and after your vaccination.

Please do not go to Ashton Gate for your vaccination as the large COVID-19 Vaccination Centre that was there has now moved to University of the West of England (UWE) Bristol. This move took place on Wednesday 4th August.

All appointments for first and second dose vaccinations have moved to the Vaccination Centre @ UWE Bristol (Coldharbour Lane, Stoke Gifford, Bristol, BS34 8QZ) on the same date, and at the same time. Those booked should have received a text message from the National Booking Service about this.

If you cannot attend the Vaccination Centre @ UWE Bristol you can rebook your appointment by logging into the National Booking Service, calling 119 or by visiting a walk-in vaccination centre.

The Vaccination Centre @ UWE Bristol will be the only site in our area able to administer the Moderna vaccine. Email bnssg.massvaccination@nhs.net if you have difficulty attending your second appointment because of the change of location.

Upcoming Walk-In Centre Details

Wednesday 11 August

12pm-8pm: Easton Christian Family Centre, Beaufort Street, Easton, Bristol BS5 0SQ. Pfizer vaccine available.

Saturday 14 August

9am-5pm: East Trees Medical Centre, 100a Fishponds Rd, Eastville, Bristol BS5 6SD. Pfizer vaccine available.

Wednesday 18 August

12pm-8pm: Easton Christian Family Centre, Beaufort Street, Easton, Bristol BS5 0SQ. Pfizer vaccine available.

Wednesday 25 August

12pm-8pm: Easton Christian Family Centre, Beaufort Street, Easton, Bristol BS5 0SQ. Pfizer vaccine available.

Saturday 28 August

9am-5pm: East Trees Medical Centre, 100a Fishponds Rd, Eastville, Bristol BS5 6SD. Pfizer vaccine available.

Wednesday 1 September

12pm-8pm: Easton Christian Family Centre, Beaufort Street, Easton, Bristol BS5 0SQ. Pfizer vaccine available.

For more information, please go to: https://bnssghealthiertogether.org.uk/

Bristol City Council’s ‘Let Get the Jab Done’ Vaccine Campaign for Young People – Especially Important for Disabled Young People!

Bristol City Council, with the Bristol, North Somerset and South Gloucestershire (BNSSG) COVID-19 Vaccination Programme, have launched a new vaccine programme aimed at young people called ‘Let’s get the jab done‘.

Whilst the campaign has been designed to encourage all young people to get their vaccination, it is even more important for Disabled young people to get vaccinated for their own benefit and that of others. It is essential that you as well as everyone else gets the vaccine as it is important in our fight against COVID-19.

With the vaccine now available to everyone over the age of 18, and ahead of the Government’s target to offer all adults a vaccine by Sunday 25 July, vaccinations are even more accessible and easy to get. The NHS has upped the number of appointments on the National Booking Service (NBS) and walk-in clinics are available across Bristol, no bookings needed.

To find out more information about the campaign and to find out where your local vaccination options, including walk-in clinics, are, go to: www.grabajab.net